A Child With Sleep Apnoea

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By the age of 1, our little girl had suffered with over 3 bouts of tonsilitis and had needed antibiotics on several occasions. We started to notice that she had a very loud snore when she slept, and nursery had commented on this several times. She was always very congested, and had a constantly runny nose. But more worrying was her breathing patterns in her sleep. She tended to stop breathing for periods of up to 20 seconds, then snort and breath in through her mouth before resuming breathing again. We took her to our GP, who told us that we had a child with sleep apnoea.

Child With Sleep Apnoea

A Child with Sleep Apnoea

Sleep apnoea is a sleeping disorder where a person suffers from breathing being interrupted during sleep. This interrupted breathing can occur hundreds of times in an average night. The sufferer can stop breathing for a number of seconds at a time. So consequently this can lead to problems if the body and brain are not getting the oxygen they need.

We first noticed Elizabeth’s breathing when she started nursery at 9 months. Children are always likely to pick up all the new bugs and viruses when they are in closer proximity to others. So we weren’t surprised when she ended up with one cold virus after another. Winter always tends to be worse for coughs and colds, as the central heating gets switched on and children play more indoors.

However we weren’t so prepared for the extra sleepless nights. She seemed to be waking up more and more in the night. Her sleep seemed very disturbed due to her breathing patterns. When she did have a cold we all went through several really bad nights. My partner and myself ended up having a shift rota for staying awake next to her on the worst nights. We were all exhausted.

She tended to be more irritable. And her eating was affected, when she was blocked up she refused food and wanted more milk.

Our GP referred us to our local hospital Paediatric Ear Nose and Throat clinic. But did warn us that there would be a 3 month wait to see a consultant.

5 Nights in Hospital

It all came to a head when she was 14 months old. After a particularly bad few nights of disturbed sleep and poor breathing, we felt she was really struggling. We called the emergency number and were seen at the children’s department of the local hospital. Her blood oxygen saturation levels were down to 92%, so she was admitted into a ward.

We spent 5 nights in the hospital while they did sleep studies and kept her under observation. One of us was allowed to stay overnight each night thank goodness. But it was an experience that I would not want to repeat in a hurry.

The Waiting Game

We went to see a Paediatric ENT consultant, who told us that they rarely operate before 3 years of age or 15kg weight. Too many complications can occur and there can be too much blood loss in children smaller than this. So we would have to wait. Plus things can sometimes improve spontaneously. We were put on a 6 month review.

Over the summer things did improve. Less cold viruses and the warmer weather translated to better breathing.

Second Winter Season

However, once the second autumn had started the symptoms returned. Elizabeth started waking again several times a night, and being irritable during the day. On the worst days she didn’t want much food. I was starting to worry if her apnoea at night could be affecting her physically. Or affecting her speech and hearing as she was always so full of nasal congestion. She regularly breathed heavily through her mouth.

A second and third visit to the consultant for reviews and we were finally told that Elizabeth would be put on the waiting list for an Adenotonsillectomy. This is where they remove both the adenoids and the tonsils, as they have become really enlarged. This is why she is always so nasal and congested.

Again we have a wait – of 36 weeks in our area. But this will put her at just under 3 years of age, which is the threshold for the operation.

Whilst the prospect of an operation on my daughter does scare me, I do want to go ahead. It can only help her breathing. And this in turn may help her to sleep better. Finally it may help her to be less irritable and improve her energy levels through being less tired.

And this is where we are right now. But I did want to share our story so far to raise awareness of this condition.

What is Sleep Apnoea?

Sleep apnoea can happen in adults, and it is what most people will think of if you talk about the condition. In adults it tends to happen if a person is overweight, have an over large tongue or small jaw. It can lead to heart problems, depression, daytime tiredness and headaches. It can even be fatal if left untreated.

There are actually 2 types of sleep apnoea.

  • Central Sleep Apnoea occurs when the brain doesn’t signal correctly to the muscles that control breathing. It is not very common.
  • Obstructive Sleep Apnoea is a far more common type, and is due to the airway being blocked whilst asleep. This can happen due to an excess of tissue, or too relaxed tissue making it hard to breathe.

What are the Symptoms of a Child with Sleep Apnoea?

In a child with sleep apnoea, weight can be a factor but it doesn’t have to be. It can also be due to having too much adenoidal and tonsillar tissue at the back of the nose and throat. Symptoms are

  • Loud snoring
  • Pauses of breathing of up to 20 seconds, followed by gasps, snorts and fast breaths.
  • The snorts can wake a child and cause disrupted sleep
  • Restless sleep and strange sleeping positions (Elizabeth used to sleep on her knees with her bottom in the air)
  • Daytime tiredness and behavioural problems
  • Bedwetting , especially if the child has been dry previously
  • A constant nasal discharge and the child having to breath through the mouth.

Delayed growth and heart problems may also be associated with child sleep apnoea. I have always been concerned that there is a real risk of Elizabeth just stopping breathing in her sleep. But I am generally a very worried mum, its just how I am. The consultants have always firmly stated that she will not stop breathing.

So – Do You Have a Child With Sleep Apnoea?

These would be my tips.

  • Go see your GP if you have any concerns. Record and take some video evidence of how your child sleeps. Ask for a referral to ENT if you are worried.
  • Ask for a sleep study
  • Raise the cot/bed mattress at one end to make it higher. We used 2 pillows so that Elizabeth could sleep on a slope. We did always move her back to being on the slope if she turned herself round. Eventually she is now at the point where she moves herself back up the gradient in her sleep.
  • Do not have the room at too high a temperature. We found the optimum temperature to be 18 to 20 degrees Celsius. A room that is too warm tended to make Elizabeth’s breathing far worse. Our Gro-egg has become one of our best friends.
  • Invest in a good thermometer. The most accurate ones we have found are the in-ear type.
  • We didn’t find the plug in decongestants to be useful, but we did use “snuffle babe” rub on decongestant at night. We found this worked better for us.
  • If excess weight is a factor, work with your doctor on diet and fitness in your child.

I hope that this has helped you decide your next move if you do have a child with sleep apnoea. Do let me know if you have anything further to add by commenting below, or follow our story on social media.

Enjoyed this? Why not read my other Mum tales in Pregnant at 43 – Being an Older Mum

Or 10 Ways To Help Your Child Not Be Anxious At The Dentist

I’m taking part in the Mummy Monday linky with Becca from Becca Blogs It Out

Lucy At Home UK parenting blogger
When a Child Has Sleep Apnoea

My Random Musings

34 Replies to “A Child With Sleep Apnoea”

    1. Jo Boyne says:

      Thank you. I am just hoping now that she has her operation soon before winter sets in again.

  1. Paula Goude says:

    I had an Adenotonsillectomy when I was about four years old I think. I’ve got happy memories of being looked after and being spoilt while in hospital, and the op did work for me. I hope it works for Elizabeth too.

    1. Jo Boyne says:

      Thank you. I hope she gets some relief from having the operation, and that she remembers her experience as being a good one too. Glad it worked for you.

  2. Tracy says:

    Thanks for sharing! It is so important to share and find others that are going through the same situations. It makes a burden lighter when we share. I am curious if anyone has ever said anything about milk being something to avoid. I know when my girls were sick and congested that reducing or eliminating dairy products seemed to help them with their asthma. Just a thought 🙂

    1. Jo Boyne says:

      Thank you Tracy. No, no one has ever mentioned cutting out dairy to us. And we haven’t even tried as the first thing Elizabeth asks for when she is poorly is a bottle of milk. Nothing else will do. And it is good to speak to others going through this.

    1. Jo Boyne says:

      I’m an anxious mum anyway Becca, so this hasn’t helped. Hopefully my story and tips will help others in this same situation.

  3. Brittany McCabe says:

    Oh my goodness, what a long process of finding out what was going on. Good job on being her advocate and finding out what she needed.

    1. Jo Boyne says:

      Thank you. It has been such a waiting game. And it is still not quite finished 18 months on almost from her hospital stay.

  4. Emily says:

    Thank you for sharing such a detailed, informative, and heart-rending post. You’re doing such a great job as her mama.

    1. Jo Boyne says:

      Thank you so much for such a lovely comment. It’s so awful to see your child unwell, I would take all the illness for her if I could! x

  5. Sophie Wentworth says:

    I can’t imagine how scary this must be for you! It’s such an awful thing to have to go through as a family. This is the first time I’ve ever heard of sleep apnoea in a child so it made for a really interesting read. I hope she feels a lot better after her operation x


    1. Jo Boyne says:

      Thank you Sophie. Hopefully having her adenoids and tonsils removed should really improve matters. We just need to keep being patient. x

  6. Rachel ~ Kids, Cuddles and Muddy Puddles says:

    This could be describing my daughter. However, every time I mention it to the doctors, I just keep getting told to “keep an eye on it.” She has had tonsillitis twice a year at least since birth (she’s 3 in November) and snores so loudly every night, waking herself a lot and holding her breath regularly. It’s definitely not normal. And her tonsils are HUGE! When she has a cold or tonsillitis, we also have to sleep with her sitting up because she just cannot breath at all. 🙁 After reading your post, you’ve given me the courage to go back to the doctors again, thank you.

    1. Jo Boyne says:

      I’m glad if it has helped you make that choice. It can never be wrong to ask for a second opinion from your GP. I hope that your little one gets some relief from this one way or another.

  7. Amy says:

    I can’t even imagine how scary this experience must have been for you! Thanks for sharing your experiences to help others who may be dealing with the same thing!

    1. Jo Boyne says:

      Thank you Amy. Yes, raising awareness may just help others in the same situation, and that can only be a good thing.

    1. Jo Boyne says:

      It can be a real problem for tired and cranky toddler behaviour!

  8. Nancy says:

    I learned so much from this blog post – sending you and your family my warmest wishes for a successful surgery and fast recovery. It’s important to get health risks checked out asap.

    Nancy ♥ exquisitely.me

    1. Jo Boyne says:

      Thank you. We didn’t know anything about it before either, but did want others to know!

  9. Jackie says:

    Great post, definitely something to be aware of. It’s hard to know what’s what with the kiddos, and I am glad yours is getting the help needed. Hopefully you all get better sleeps soon!!

    1. Jo Boyne says:

      Thank you Jackie, you are right. When they are this small they cannot express how they are feeling or where it hurts. That is the difficulty. Thank you for your comment.

  10. Amey says:

    Both of my kids are snorers. They’ve both had their adenoids removed, but the snoring persists. I get scared when the snoring stops at night – I never know if they’ve just started breathing normally or if they aren’t breathing at all! My oldest has a lot of behavioral issues, and I think a lot of them have to do with his level of tiredness. But no one will listen, even his ENT. I’m glad to hear that you’ve gotten somewhere with your sleep battle. Good luck!

    1. Jo Boyne says:

      Thank you for commenting Amey. I know that having the adenoids removed may not solve the issue, and sorry to hear that it wasn’t the solution for you. I just do hope it works for us, and hope that your ENT listens to you or it resolves spontaneously in the future for your LO. x


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